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X-O HoboJoe · Post by **X-O HoboJoe** » Tue Jan 31, 2012 5:18 pm

http://www.cff.org/aboutCFFoundation/Ne ... lydeco.cfm

comicsyte95 · Post by **comicsyte95** » Tue Jan 31, 2012 5:20 pm

Elveen · Post by **Elveen** » Tue Jan 31, 2012 7:15 pm

One of the 1st steps to CF = Cure Found.

StarBrand · Post by **StarBrand** » Tue Jan 31, 2012 8:02 pm

greg · Post by **greg** » Tue Jan 31, 2012 8:06 pm

caniac · Post by **caniac** » Mon Feb 06, 2012 10:21 am

magnusr · Post by **magnusr** » Mon Feb 06, 2012 12:50 pm

Good news!

/Magnus

Serpymatt · Post by **Serpymatt** » Mon Feb 06, 2012 10:40 pm

As a student nurse, that makes me SO happy to see that! We actually had a father of a CF child come speak to our class this quarter and you could tell he was an amazing man. Seeing the hope in his eyes when he was telling us about this new drug... that is DAMN good news!

Drift · Post by **Drift** » Tue Feb 07, 2012 12:20 pm

Brilliant news.

Knightt · Post by **Knightt** » Sun Feb 12, 2012 12:45 pm

Yes, this is the first real breakthrough (VX-770) in regards to treating the G551D mutation (about 4% of CF kids/adults have this mutation). There is also work being done on another mutation which I was going to learn about the week after next as I was invited out to the Leaders Working Group out in Bethesda, Maryland but am unable to attend.

Things look better everyday... the wait for Alyssa's particular mutation to be worked on is... hard.

Serpymatt · Post by **Serpymatt** » Sun Feb 12, 2012 10:34 pm

Knightt wrote:Yes, this is the first real breakthrough (VX-770) in regards to treating the G551D mutation (about 4% of CF kids/adults have this mutation). There is also work being done on another mutation which I was going to learn about the week after next as I was invited out to the Leaders Working Group out in Bethesda, Maryland but am unable to attend.

Things look better everyday... the wait for Alyssa's particular mutation to be worked on is... hard.

The son of the gentleman who spoke to our class also had a different mutation, but he seemed extremely hopeful that this breakthrough was a HUGE step in the right direction

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